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Mum Starts Fundraising Campaign

Monday January 19 2015

A MUM who lost her five-month-old baby daughter to a rare illness has started a fundraising campaign.

Samantha Fay, 24, from Cudworth, is raising awareness about spinal muscular atrophy (SMA), a genetic disorder that affects motor neurons typically in children and young people.

Baby Heidi-Rae was diagnosed with the disease on December 1 of last year and sadly passed away just six days later.

Samantha said: "None of our family or friends had ever heard of SMA, but it causes severe muscle weakness and results in problems with moving, eating and breathing.

"I want to raise awareness of SMA and also raise funds for Heidi-Rae's headstone."

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