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Parents Raise Money In Young Son's Memory

Friday January 16 2015

Jack Linford Jack Linford

PARENTS grieving for their two-year-old son have donated £1,500 to the children's ward at Barnsley Hospital.

Laura and Simon Linford, from Gawber, lost their son Jack in September and have organised a number of fundraising events in his memory.

Jack suffered from VLCAD, which prevents the body from converting certain fats to energy.

Jack - described as a "feisty, mischievous little monkey" - became ill and as his parents were getting ready to take him to hospital close to their home, he suddenly stopped breathing.

He was rushed by ambulance to Barnsley Hospital and put into an induced coma, but after being transferred to Sheffield Children's Hospital for further tests, nothing could be done to save his life.

His five-year-old brother Alex also suffers from the condition.

Money raised has bought specialist sensory equipment including fibre optic lights and UV light equipment.

Laura said: "To begin with our friends and family got together and set up a Facebook page to help raise money for funeral costs.

"The response we got from the local community and beyond has been absolutely fantastic and we now want to use the money to give back to local causes.

"We're glad we have been able give something back to the children’s ward and are really pleased with how the sensory room looks now.

"I've now taken over the Facebook page and have set up a Just Giving page to keep fundraising in Jack’s memory. I also want to raise awareness of VLCAD and I am petitioning to get testing for the condition on newborn screening."

Stephen Wragg, chairman at Barnsley Hospital, added: "The sensory room looks fantastic with the new equipment and it will make a real difference to our young patients."

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