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Mum Raises Awareness In Son's Memory

Thursday November 6 2014

Jack Linford Jack Linford

A MUM whose two-year-old son died suddenly from a rare genetic disorder is raising awareness in his memory.

Jack Linford suffered from VLCAD, which prevents the body from converting certain fats to energy.

Jack - described as a "feisty, mischievous little monkey" - became ill and as his parents Simon and Laura were getting ready to take him to hospital close to their home in Gawber, he suddenly stopped breathing.

He was rushed by ambulance to Barnsley Hospital and put into an induced coma, but after being transferred to Sheffield Children's Hospital for further tests, nothing could be done to save his life.

His parents want more people to know about the condition that killed him and for money to be raised for the the charity CLIMB that has helped them so much.

Laura said: "We have set up a Facebook page and friends are fundraising in Jack's memory because we want something good to come out of something so hard and cruel and unfair.

"We want to help other families, raise money for the children's ward and help finance research. Our very special mischievous little monkey deserves all that and more.

"I intend to get it onto the newborn screening so I have started a petition and currently have 750 signatures."

For more information, click here or here.

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Reply Posted by Laura Linford on Thursday November 6 2014 at 17:26

Reply Posted by Beth Folcher on Thursday November 6 2014 at 21:32
My 9-yr-old son is alive today because of newborn screening in our state. Save the babies!

Reply Posted by Wilma Reid on Friday November 7 2014 at 00:03
My granddaughter has this condition, she was screened by the insistence of her mum thank god as she should not have it as only one parent is an infected carrier. I thank God every day that she was caught in time to have treatment.

Reply Posted by Kelsie Lallak on Thursday November 6 2014 at 17:37
Every baby every test everywhere. It just makes sense. Save babies.

Reply Posted by lauren on Thursday November 6 2014 at 17:57
Such a beautiful child, heaven gained a beautiful soul, sorry for the loss of your son, good luck to you both raising money for the charity.

Reply Posted by Deborah Guillory on Thursday November 6 2014 at 18:02
My granddaughter also has this disease VLCADD).

Reply Posted by Kathy on Thursday November 6 2014 at 18:44
In honor of Max and his fight

Reply Posted by Sarah O on Thursday November 6 2014 at 20:29
R.i.p lil man, my heart goes out to Laura and her family. Hope you raise hundreds and hundreds.

Reply Posted by laura rocha on Friday November 7 2014 at 06:52
Such a cute little guy! So very sorry for your loss. My son was found to have LCHAD by newborn screening in California, USA. I often think about how fortunate we were to have that test done at birth! All babies need to be screened for FODs around the world without question.

Reply Posted by jister on Friday November 7 2014 at 22:02
Charity event @ bar loco 14 nov 9pm til 4am