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Little Darcy's Mum Describes Worry

Tuesday April 30 2013

Darcy Burke Darcy Burke

PARENTS of a five-year-old girl have described their horror at finding out about her terminal brain tumour.

Darcy Burke was diagnosed with pontine glioma - a rare brain stem tumour - just two weeks ago. Having complained of headaches for about four months, she was referred to Sheffield Children's Hospital after experiencing double vision.

Because of the tumour's position it's inoperable so Darcy will be undergoing radiotherapy and chemotherapy in May to extend her life expectancy from nine to 15 months.

In the meantime, mum Joanne Willis, of Darfield, and dad Dave Burke, of Wombwell, have dedicated themselves to raising as much money as possible to give Darcy a wonderful summer.

"I don't think it's really sunk in yet," said Joanne, 38. "There's so little hope that what we've got to do is try not to grieve for her twice and make the next few months the best of her life.

"The bottom has fallen out of our world and the family are absolutely devastated like we are. They can't comprehend how something like this could happen to an innocent little girl.

"It's something you never imagine you will have to go through. You read about it and your heart goes out to them but you never think it will happen to you. We don't sleep at night - we're just living on prayers."

But she added the 'overwhelming' support of friends, family and 'complete strangers' had eased the difficulty. 

For more information, click here, or visit here for more news on fundraising days. 

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Reply Posted by jo on Tuesday April 30 2013 at 10:49
sending all my love and support to little darcy and her family I cant even begin to imagine what you are all going through. my thoughts and prayers are with you and hope darcy has the best summer ever.

Reply Posted by mandy on Saturday May 4 2013 at 20:06
aww this is heart breaking thought are with you and your family xxxx

Reply Posted by Kathryn on Saturday May 4 2013 at 20:08
Aww bless, hope the sun shines every single day and everyone gives little Darcy a fun filled summer, cannot imagine what your'e going through and my thoughts are with you all, love and hugs xxx

Reply Posted by Lisa wilson on Saturday May 4 2013 at 20:13
My heart just broke reading this, my thoughts are with all darcy's family,
Sure puts things into perspective

Reply Posted by nicola on Saturday May 4 2013 at 20:13
Cannot begin to imagine what you're going through,I hope Darcy has a fab summer and all goes well xx

Reply Posted by Annie on Saturday May 4 2013 at 20:25
Hope u all have a great summer x thoughts and prayers to u all x

Reply Posted by gaynor on Saturday May 4 2013 at 20:45
Echoing what previous people have said. Heartbreaking! Hope these lovely parents can give their beautiful brave princess the best time this summer. Create some happy memories amidst their sorrow. I pray for a miracle, x

Reply Posted by Lesley on Saturday May 4 2013 at 21:33
Such heartbreaking news. Life is so unfair. Love and hugs to Darcy and her family. Cherish every single moment and keep them in your hearts forever xx

Reply Posted by laura on Monday May 6 2013 at 14:09
wishing you all the best and the love in the world to Darcy and your whole family xx

Reply Posted by joanne on Monday May 6 2013 at 14:11
my heart goes out to darcy and her family hope she has lots of fun and laughter this summer and her parents and family have lots and lots of treasured memories to cherish (take photos where ever possible to cherish )
praying for a miracle you brave little girl