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Dementia Booklet Launched By National Charity

Monday August 19 2013


We Are Barnsley We Are Barnsley


A BOOKLET to help the estimated 2,689 people suffering with dementia in the town has been launched by a national charity.

The Alzheimer's Society has provided a comprehensive guide for sufferers and carers across Yorkshire and hopes it will encourage those living with undiagnosed dementia to seek help.

There are about 1,239 recognised dementia sufferers in Barnsley, but it's estimated there are about 1,450 sufferers who have not been diagnosed.

With diagnosis rates increasing, some GPs are still reluctant to diagnose the condition and the guide, which has been produced by Alzheimer's Society and part-funded by The Department of Health, is designed for healthcare professionals to offer to people who have been diagnosed with dementia.

Judith Gregory, Yorkshire area manager for Alzheimer's Society, said: "When people are diagnosed with dementia, they're often unsure what to do and where to turn.

"For the first time, this guide brings together the key information that people need. We're hoping that it will encourage more of the almost 34,000 people in Yorkshire and the Humber who are living with undiagnosed dementia to seek help."

For more information on the guide, click here.

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Reply Posted by Jan on Saturday August 24 2013 at 15:38
Your not kidding GP's are reluctant to diagnose dementia. Working as an independent home help I have supported numerous families through the period, when dementia is first suspected, to getting a diagnosis. I have even paid for extra training on dementia as these people and families have no one to turn to during the early stages.
Often, it can take over 12 months to get a diagnosis.
GP's don't listen to family.
Family are not allowed to talk to the GP without the sufferer present:
If a family member tries to tell the GP symptoms in the presence of the sufferer, be prepared for a few kicks to the ankles and elbows in the ribs from the sufferer who will swear blind your lying and they do no such thing:
GP's take the sufferer at face value on that particular day and time:
If you understand dementia you will know the sufferer has good and bad days and times, and usually an appointment at the GP's lands on a good day.
After the diagnosis the help offered is dire. Professionals who claim to understand dementia and have been fully trained plus have experience, send different people out to the sufferer which is just so stupid I cannot put it into words.
More and more I find, sufferers and families relying on the only constant person in their lives, which is their home help. Carers change from day to day, mental health professionals change from week to week, yet they all claim to understand dementia.
I have been present when so called mental health professionals from the 'memory team' have arrived and the only term I can describe them with is 'sales person'. Producing a glossy catalogue with all these fantastic gadgets that will help with their daily tasks, that cost a fortune!.
The support for people with dementia is absolutely dire.